• Approach

    Many people have a clear view of how they wished to be cared for at the end of their life. However often, care and treatment at the end of life is complicated, making those wishes more difficult to deliver.

    End-of-life care is a relatively new clinical discipline, helping people at the end of their life to live as well as possible until they die. Although there are examples of good practice and emerging gold standard evidence in some areas, the field lags behind in terms of adopting innovative practice and technology.

    This multi-year project aims to research and design innovative solutions that improve the quality of care, alleviate suffering for dying people and transform the support their families receive.

  • Emergency care and planning toolkit

    Helix is working with the Resuscitation Council to help develop a new plan and process called the Recommended Summary Plan for Emergency Care and Treatment (ReSPECT) that will enable patients, families and clinicians to document personalised recommendations of emergency care preferences, priorities and clinical decisions.

    The plan is created through conversations between the patient and their healthcare professional. The plan is recorded on a form, and supported with a digital guidance tool. By improving communication and awareness, we hope to foster more meaningful, compassionate conversations which will aid staff to better care for patients, enable patients to better understand what is happening, and better support future care planning

    Visit the project website

  • Advance Care Planning

    With two out of three people preferring to die at home, we understand there is a need for personal preferences and priorities to be more effectively respected and delivered. Advance Care Plans have been shown to have a positive impact on the quality of care that people receive in their last year of life.

    By making advance care planning more accessible, we are helping people to achieve a dignified and comfortable death in the place of their choice, whilst reducing the number of unnecessary and unwanted hospital admissions during this time.

    We have created a working feasibility prototype for an online advance care planning platform that allows people to create an Advance Care Plan (ACP) and Advance Decision to Refuse Treatment (ADRT). This project was created through collaboration between the Helix Centre and Farewill Ltd, and funded by SBRI.

  • 81% of people say they would prefer to die at home, and only 23% do.

    VOICES, 2012 National Bereavement Survey

  • Only 12% of people over 75 have an Advance Care Plan

    Age UK

  • Hospice of the future

    We will soon begin a broader and more ambitious project, to explores how modern technologies can be used to provide for a ‘good death’ for more people in the community, and present a vision for the ‘hospice of the future’.

  • "Digital technology has the potential to revolutionise the way we deliver a good death. "

    Matt Harrison, Helix designer.